You could hear about us, for the first time, in 2008 when we founded a nonprofit association Patients IBD on the impulse of patients with chronic inflammatory bowel diseases. In the beginning, the Working group of doctors for idiopathic intestinal inflammations at the Czech Gastroenterological Society helped us, under the leadership of Professor Milan Lukas. Since then, we have been helping patients with Crohn’s disease and Ulcerative colitis to manage a daily struggle with the disease.

Since 2011 we have been world-wide. We are members of the European Federation for Crohn’s Disease and Ulcerative Colitis (EFCCA), we establish contacts with organizations  all around the world, participate in international projects and gain experience. We belong to the National Council of People with Disabilities of the Czech Republic and the Association of Public Benefit Organizations. We share the offices with the Gluten-free Society and with the Czech ILCOvoluntary association of people with ostomy. Representatives of the association Patients IBD are educated by the project of Academy patient’s organizations. We participate in a council meeting of patient organizations‘ at the Ministry of Health of the Czech Republic, we point out the need to improve conditions for the sick people and try to improve a better availability of modern medicines. We are also dealing with the State Institute for Drug Control and with individual health insurance companies. We believe that early diagnosis and appropriate treatment are the foundation of success; therefore we have been involved in translating Patient Guidelines in IBD treatment.

WHAT DO WE DO?

Seminars – We select topics that you are interested in and doctors who can advise and help. The seminars are held regularly every month, usually on Thursdays at 5.30 pm at our office. In the past, you might have been able to visit us for a lecture focused on the news in the treatment of intestinal bowel inflammation, pregnancy in patients with IBD, or process of disease in pediatric patients. We select topics according to the patient interest.

St. Wenceslas IBD Conference – Since 2009 we have been hosting St. Wenceslas IBD conference always in September. Lectures are presented by doctors from all over the Czech Republic. Part of these is consulting that help patients, for example with legal issues, but also with nutrition or cessation of smoking.

IBD World Day – Note the date of 19th May in the calendars. This day we are reminded of the disease that afflicts more than 5 million people worldwide. Crohn’s disease and Ulcerative colitis suffer more than 45,000 people in the Czech Republic. That’s why we put on a purple color in May, inform the public about inflammatory bowel diseases and we make up snakes from toilet rolls. With the longest, 2..4 km in length, we were even registered in the Czech Book of Records in 2015. Last year, Patient Organizations, supported IBD World Day, from 36 countries on four continents.

Don’t be afraid to travel with IBD! – Summer Photographic Competition Don’t be afraid to travel with IBD is for everyone who, despite its health problems, go for to the adventure. For the fifth year we have been motivating patients not to give up and get to know the beauty of the Czech Republic and other countries or continents. Competitive photos from trips, interesting places or holidays are published on our Facebook profile, where online voting takes place.